Visiting Day!

Well another week has come and gone and I can hardly believe how quickly time has been going as of late. I think I had mentioned in my last post that I would be visiting the implant clinic again this week to see why my pain level is going up at the moment. Ever since I got back from Disneyland things just haven’t felt quite right and the pain has been bothering me more. So it was off to the clinic this week to do some brain storming as to why things are bothering me so much right now.

When we got to talking about all the different reasons that my pain could be up we weren’t really able to draw one conclusion as to why I’m flaring up the way that I am. It isn’t stopping me though I keep pushing and moving forward believing that it’s going to be an amazing day when I’m pain free! With the pain being worse my sleep has been affected as well and I’m lucky if I get a good solid sleep. So the last couple of days have been a little rough when it comes to functioning the way I’d like to.

We aren’t sure but there is the possibility that coming down off the medication might be causing some of the extra pain as well. It’s a fine line to find the right balance of medication to combine with the implant. It’s possible that I might be too low and as a result we’ve bumped my meds up to see if it makes a difference. When we first started talking about reducing the meds I knew that it wasn’t going to be easy on my body and that we’d have to do lots of adjusting! It is nice though that I’m able to come down a bit off some of the meds. Although like they said it isn’t easy to do because your body has to do a lot of adjusting that it has to go through.

Overall what was encouraging was that they said I’m doing well post implants. Even though I’m having a few problems with elevated pain you need to look at the big picture. A few months ago we were hoping to reach a target with my pain medication. I’ve now reached that target and all I need to do is some fine tuning. If you look at my overall quality of life there is no question that it has improved. So even though here and there I’m having to deal with a few flareups I’m happy with where I’m at at this stage in the game.

I’m going to keep today’s post short because well really if I’m being honest my brain needs a rest. I just need some me time! So I’ll see you all in a few days.

 

 

About Ross

My name is Ross and I want to welcome you to my site. I'm married to an amazing woman who is my best friend, and my soul mate all rolled up into one! I am the father of two very special girls who we adopted from China & Ethiopia. Together we make up one very multicultural family! In 2006 my life was turned upside down when I was diagnosed with CRPS/RSD. It was the start of a journey I never could have expected, and one that I couldn't fight without God. CRPS is a chronic pain disease and it started in my left hand. I lost mobility of my hand and started to experience pain unlike I ever could have imagined. Not to long after my left ankle became affected. I spent the better half of about a year not knowing what was going on in my body and traveling from doctor to doctor to find a diagnosis. As time went by I started learning more about CRPS and all its symptoms that it brings with it! As I started to learn more about CRPS I felt the growing need to share the information I was learning with others and to raise more awareness. As well I want this to be a place where we can connect and support one another. So I would encourage you to contact me if you want.
Bookmark the permalink.

4 Responses to Visiting Day!

  1. lisa says:

    Hi there Ross!
    I am sorry to hear that you pain is elevated. Hopefully it really is just fine-tuning your medication. Give yourself some time, and do be sure to rest. Above all else, keep your wonderful spirit!

  2. Liz says:

    Sorry to hear that you’re still having difficulty with flare ups. It’s always hard to find the right balance of meds. Three years down the track, mine are still not doing what I hoped… though they did tell me they couldn’t promise anything and there was likely to be no cure as my auto-immune disease (Ankylosing Spondylitis) throws in another factor that makes treatment difficult. Interestingly my AS is possibly the best under control it has been in 20+ years (though I do still have joint stiffness & pain every day).
    I’d love for a miracle cure but that can only come from God. I would like to have a few days at least without the constant pain, burning and aching all down my left side. That said, it is a lot better than it was 12 months ago.

    I love your positive attitude, Ross. It’s encouraging & inspiring.

  3. Amy says:

    Well this is good news right?!? Things are on the rise. I keep praying your pain will lessen and your meds will even out.

  4. casey says:

    I’m sorry to hear that the pain is increasing and I’m praying that the med increase helps this issue. Praying that the Lord gives you some relief and that you continue to heal and improve in Jesus name! I can only imagine how many people you are inspiring with your blog and your attitude!

Leave a Reply

Your email address will not be published. Required fields are marked *