Welcome to my site! I am 52 yr old father of two amazing kids with an even more amazing wife. About 17 yrs ago I was diagnosed with a rare disease called CRPS/RSD (Complex Regional Pain Syndrome) and it changed my life. I created this website for others that suffer from the same condition, or who live with chronic pain. My goal is to raise awareness and the educate others so that we can not only find treatments for this disease but hopefully a cure. As well I wanted to create a place where we can share what we go through on a daily basis. I want people to know that we don’t have to let the pain take over our lives, and that through a positive attitude that we can take on and accomplish anything we want to do.
It hasn’t always been the easiest of times as I’ve adjusted to what has happened, however it’s my faith in God that has carried me through. From the beginning things haven’t been easy as it took almost 2 yrs to find a diagnosis. I lost the use of my left hand and foot, and have to live with chronic pain 24/7. It was hard to come to terms with a world that was spinning out of control. I had to leave my job and rely on others to do things for me that I was used to doing myself. Here at my site you will read about different things I’ve had to walk through during my journey. I will also be posting about friends and family and how this disease has affected their lives.
This site originated as well as a way for me to express my emotions about how I was feeling as I tried to navigate through waters that I hadn’t been through before. Taking on a rare disease that so many others don’t understand including myself is a daunting task but I’ve discovered some things about myself in the process. I want people to know that it is possible to overcome, and that you don’t have to give up hope. If you want to receive regular updates please sign up for email updates or my RSS feed. Or if you want to connect with me then send me an e-mail through this site, or leave me a comment through one of my posts!