CRPS & Sleep

As your reading this post I’m either busy trying to hunt down Mickey Mouse or I’m laying by the pool enjoying the California sun! That’s right I’m enjoying some much needed time away with the family and won’t be returning for a week. So if a few days go by and you don’t see a post please check back again. I’ll resume posting once I get back.  With everything that I’ve been through in the last several months I just find that there’s a serious lack of energy to get through every day. I’ve been having a really hard time with this issue and not being able to sleep very well hasn’t been helping that issue.

I’ve mentioned before that with CRPS one of the things that comes along with is difficulty in sleep patterns. Now since my surgery I seem to get a little more broken sleep but it’s never very good. On an average night I maybe get 3 or 4 hours of broken sleep. What I mean by broken sleep is that I never get into REM sleep. When I am able to get any sleep I can usually count on walking up five or ten times. Usually what happens is that my body stays awake until  it just gets to that point where it can’t take it anymore and it just has to shut down.

A lot of people don’t understand that this is all a part of CRPS and that most of us can’t remember the last time we had a great sleep with a solid eight hours of sleep. I could take sleeping pills but the effects that they have on my body just don’t make it worth taking them. Half the time they make me feel a whole lot worse so it’s not worth taking them. Not to mention that the pain usually ends up waking me up anyway, and it’s just adding to all the pills I’m already taking. It really ends up being a pros and cons decision and there end up being more cons than there are pros!

So as a result of the lack of sleep my body has had to adapt to living with less sleep than it should be getting. I wish it was different but this is the way it is at the moment. My daughter asked me yesterday if I’d had any dreams to which I answered “no” and that I couldn’t remember the last time I had a dream. Sleep to some people may be seen to some people as something that really isn’t all that important. To me it’s one of those small things that I’d love to have back. For now I continue to do relaxation therapy to get myself relaxed enough to sleep. Sleep is one of the things that hopefully over time the implants will help me with. Until then I try to do the best I can! See everyone soon!


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About Ross

My name is Ross and I want to welcome you to my site. I'm married to an amazing woman who is my best friend, and my soul mate all rolled up into one! I am the father of two very special girls who we adopted from China & Ethiopia. Together we make up one very multicultural family! In 2006 my life was turned upside down when I was diagnosed with CRPS/RSD. It was the start of a journey I never could have expected, and one that I couldn't fight without God. CRPS is a chronic pain disease and it started in my left hand. I lost mobility of my hand and started to experience pain unlike I ever could have imagined. Not to long after my left ankle became affected. I spent the better half of about a year and a half not knowing what was going on in my body and traveling from doctor to doctor to find a diagnosis. As time went by I started learning more about CRPS and all its symptoms that it brings with it! As I started to learn more about CRPS I felt the growing need to share the information I was learning with others and to raise more awareness. As well I want this to be a place where we can connect and support one another. So I would encourage you to contact me if you want.

2 Responses to CRPS & Sleep

  1. Amy says:

    I know your hanging out with Mickey and his buddies but I wanted to say hi! Sleep is an evasive thing for me sometimes. I have even been put on prescription sleeping meds in the past. Now my allergies are helping with my restless patterns. I take a clariton and a benadryl every night. The benadryl knocks me out cold. We have wretched amounts of allergens here. Safe travels!

  2. bettyl says:

    I can certainly relate. I had thyroid problems that affected my sleep and I haven’t had many natural night’s sleep in years. I pray your implants help!

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