I had intended on posting a few days ago but once again things are a bit on the crazy side and I’m trying to get my basement finished sometime before summer. The restoration company that’s doing the construction is taking their sweet time in finishing the work they need to do. They came Wed of last week to start the framing but then Thurs decided not to show. What made me even more frustrated was that I had called to see where they were and nobody even returned my call. Late in the day I finally did get a call saying they would come Friday. What I wasn’t expecting was that they would show up and do a half hours work then leave! Talk about frustrating!
My pain levels have been up and down over the last couple of days but at the same time I’ve been under a lot of stress so I have to expect things will be a little worse. In a week I’ll be headed to the surgeons office to see how things have been healing over the last few weeks. So far things seem to be doing well but it’s just a really slow process. I’m trying to take things easy but that’s easier said than done because I have lots of winter clean up to do, and I can’t afford to hire everything out. As those of you who are dealing with disabilities know, you become dependant on others to do so much. It’s a constant reminder that your life has changed and you have to work hard not to let it affect you.
Depending on so many others is hard for us and for a long time you may have to rely on those people around you. The hardest part is accepting that help and for the longest time I didn’t want to take it. Once I did though it helped me focus on getting better or adapting in ways that I needed to in order to make life a little less complicated. It was one of the hardest things I’ve had to do in my life because you’ve lost your independence and some of the things you need help with really frustrate you to the core. With my hand being affected I can’t move the fingers on my left, so when it came to cutting up my food I just couldn’t do it. My wife and I would be out to dinner and I’d have to pass her my plate and have her cut up everything. Another in your face reminder of the change that has happened. The good news though is that over time I’ve learned to adapt and for the most part now I can do it myself! It’s about giving yourself time to adapt and making small changes in your life. You can and will regain some of that independence that you lost, it just takes a little time.
As we head into summer this is the time of year where there are lots of outdoor jobs that need to be done. My list of jobs for this year is long and a large amount of those jobs are too tough for me to do. My outlook before would be just to put those jobs out of my mind because I couldn’t do them as well as it would be far to expensive to higher them all out. This year is going to be different though because I’m going to find ways to adapt to do those jobs. I have the confidence now in that I can overcome any obstacle that’s put in front of me. It might not be that its done the same way but I’m going to do them again!
So you might be a little on the frustrated side at the moment but never lose hope. It just takes a little bit of time and effort on your part to adapt and gain back some of that independence that you’ve lost.
Hi everybody! Well I hope you all had a great Easter. My girls had the week off, so there was a whole lot of family time. The girls were able to spend time going to movies, playing mini golf, spending time at the lake, and much much more! It was a week to try and put the disaster of a basement that is awaiting rebuild out of my head and try and destress a bit. Although a amazing friend came over and did a lot of work to try and help move things forward. With all the winter claims that the insurance company is getting it’s slowing things down. Not frustrating in the least!
frustration that when I entered my site all my work was gone!!! It took me the better half of last night to edit and fine tune what I wanted to say and all of that is gone. I had even backed up my work but for several hours last night the server went down. There must have been a glitch because nothing saved. Worse than that is that I felt really good about what I had written, and there’s no way that I’ll be able to duplicate it now. So frustrating! All that was left was my first paragraph so I guess I’m starting things from scratch.
Today has been a better day than some in the last week or two, so now is the time to sneak in a post amidst all the chaos. Things have been pretty tough for me on the physical side for the last couple of months but even so I am pushing forward not allowing this beast of an illness to get the upper hand. Never have I wanted warmer weather to come more than I do right now! It’s been a long hard winter in my parts and when your dealing with chronic pain it makes it that much worse. So I’m trying real hard to think about warm temperatures and happy thoughts at the moment!
to be before all of this started.
When your talking to a person who knows nothing about CRPS and the pain that you feel, that person often says it’s all in your head and you need to put the pain out of your thoughts. That’s exactly the problem you can’t put it out of your head! You struggle daily to take your thoughts away from the pain and try to focus on something else. Trying to take your mind off of the pain is just the tip of the iceberg when it comes to dealing with your brain. There are often times when anxiety affects a person because of everything else that’s going on inside their head. I could get into all kinds of different issues that are going on up in a persons brain but my point is that it isn’t just the physical that people dealing with CRPS are affected by.
