Growing the CRPS Community

Today’s been one of those days where you try with everything you have to get things done but it just doesn’t work out! I got three quarters of the way through writing today’s post when my computer decided it was going to crash. There’s a reason that we are suppose to “save draft” and its most frustrating when you abide by that golden rule and your computer doesn’t do what its suppose to do! It Continue Reading →

What Direction Are You Headed?

Hi everyone! Yes I’m still here although you’d never know it with how frequently I’ve been writing! I’ve been trying to get to posting but things are crazy right now and I’m trying to stretch myself in ten different directions. Never in a million years did I think that my advocacy efforts would take off in this way but they are. In a couple of weeks we will be holding CRPS Awareness Day(Nov.2) again and Continue Reading →

How Do You Navigate Rare Disease?

Today’s been one of those days that finds me moving just a little bit slower, and feeling just a bit more pain than normal. Par for the course in a life that I’ve come to know and accept. Every day is a new adventure and like I tell so many of you, never expect your day to turn out the way you had planned it. I’m not trying to be negative in what I’m saying Continue Reading →

Where’s Your Frame of Mind?

Things have been a blur the past few weeks because its been so busy! The month of June is one of those months where you both love it and hate it! With the school year coming to an end we have all the usual year end things happening and at the same time we can’t wait for summer holidays to start. Just get me through the month and all will be good. Throw in the tail Continue Reading →

Together We Thrive!

Well after an exhausting weekend in Chicago at the HealtheVoices17 conference I came back with renewed vision and refreshed ready to get back into the trenches of advocacy! Did I ever leave? No you never stop! For the last four days I’ve met with advocates from all over the world! Yes we had advocates join us from as far as Australia, Taiwan, Argentina, Brazil, and United Arab Emirates at the conference. It was a pretty amazing group of people and I can’t tell you just how much Continue Reading →