In Recovery!!

Somehow I didn’t think that I was going to be writing a Thanksgiving message from my hospital bed but here I am. Surgery didn’t go at all the way I was expecting and so it’s been almost a week in hospital now. I want to go home! I’m feeling beaten up and in need of my own bed at this point in time. When that’s going to happen I really don’t know, the doctors are due to re-evaluate me today to see if I can manage the rest of recovery from home. I was only up a few times yesterday and I think they’d like to see me up a bit more often managing things a bit better on my own.

My surgery to replace the neuro stimulator took over 6 1/2 hrs in surgery when the process should have only taken about 1 1/2 hrs. They ran into a lot of problems trying to get the lead to go where it needed to go. They had a lot of surprises along the way and found a lot of adhesions that they had to cut through. Ultimately they had to remove two pieces of bone in the T1 & T2 area to try and get the lead in place but yet another surprise showed itself,  a ring of scar tissue around the bone they partially removed. After all that however the success story was that they got two of the contacts in the lead into a place where they should never move giving perfect coverage to the limb needed.

Now comes the long hard mountain that needs to be climbed. If your considering an implant of a neuro stimulator you need to understand that there’s going to be a lot of pain when it comes to the recovery side of things. When the surgeon goes in to place the lead in your back, all of those nerves start getting upset and then your CRPS has a grand old time doing its thing, making your body scream with pain. There’s no way around it! If you have CRPS and you’re having a procedure done, there’s going to be extra pain and a whole lot of it! You can get through it though! While I’ve been here at the hospital I’ve been doing a lot of praying to get through this stage.

While I’ve been here at the hospital it’s been a real lesson in frustration trying to get the nurses and people providing my health care to understand the nature of the beast I’m dealing with. Over and over I’ve had to explain my condition and that the standard pain scale can’t be applied to a person with my condition. I thought that by being moved to a neuro ward that my chances may be better at getting the treatment plan that I needed for my pain but it’s become so evident that more education needs to take place. There seems to be a real disconnect understanding that CRPS patients already take high levels of pain killers. As a result this always effects how you as a CRPS patient are treated when it comes to getting anything extra for your pain relief.

As the day has progressed it’s become more and more evident that today won’t be the day I’m going home. It’s just been one of those days where emotionally I’m all over the place because I want to be home with my family!

 

 

 

About Ross

My name is Ross and I want to welcome you to my site. I'm married to an amazing woman who is my best friend, and my soul mate all rolled up into one! I am the father of two very special girls who we adopted from China & Ethiopia. Together we make up one very multicultural family! In 2006 my life was turned upside down when I was diagnosed with CRPS/RSD. It was the start of a journey I never could have expected, and one that I couldn't fight without God. CRPS is a chronic pain disease and it started in my left hand. I lost mobility of my hand and started to experience pain unlike I ever could have imagined. Not to long after my left ankle became affected. I spent the better half of about a year not knowing what was going on in my body and traveling from doctor to doctor to find a diagnosis. As time went by I started learning more about CRPS and all its symptoms that it brings with it! As I started to learn more about CRPS I felt the growing need to share the information I was learning with others and to raise more awareness. As well I want this to be a place where we can connect and support one another. So I would encourage you to contact me if you want.
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4 Responses to In Recovery!!

  1. lisa says:

    Ross, I am so happy that the surgery is over, but I am so sorry for all you’ve gone through, due to it, especially the pain. I hope that by the time you read this, you have some relief, and I hope you will be able to be at home with your family REAL soon.

    Keep your spirits up, my friend.

  2. Susanne says:

    I’m so sorry to hear that even you have problems to get the pain medications you need. After my time at respiratory and general internal medicine, and now with palliative care, and having been for a bit at the uro ward (our ward shared with them during the summer) I’m realizing that the only people who actually get proper help for pain is cancer patients in a palliative care unit (possibly in a pure oncology unit too). All other doctors seem scared of ordering the proper doses. It even happened to me that one of our patients had to stop by at the ER since it was at night and we don’t have any doctor then. When he arrived to us he was in pain, and the doctor at the ER had prescribed a ridiculous PRN dose of Oxycodone, when it was even clearly charted that his usual dose was more than the double. Like if the doctor couldn’t read or didn’t dare to believe that a patient can take so much.
    It’s so sad to see what an incompetence there is in our hospitals when it comes to pain management.
    Hang in there and I hope you will come home soon.

  3. devon says:

    I’m glad you are in recovery, but I’m sorry to hear they are keeping you longer. I can’t imagine the feeling of just waiting for someone else to decide when you get to do what you want. I will add you to the list of people I’m praying for. All the best.

  4. Chris H says:

    Long road ahead mate, sorry your pain levels are so bad.
    I’ve heard ‘we’ don’t know just how bad the pain is for a CRPS’s patient, and I understand this.
    Unless you have been in a certain situation, one cannot understand.
    My sympathies to you, and I hope it’s not as bad as you expect further down the pain tract.

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