Keeping It Real!!

Hi again! It’s been a little over a week trying to put this post together, needless to say it’s been a lesson in frustration. With the increase in medication for my pain I’ve found that concentration for any period of time has been more difficult than usual. It doesn’t normally take this length of time to put together a post but I’m struggling at the moment. I’m in defence mode trying to get everything under control to be more comfortable. At least until I have my surgery to replace the stimulator that isn’t really working. I wanted to include a few more trip pictures so enjoy as you read through.

Up until the last couple of months my CRPS has been under control the best it can be given the nature of the illness. The last few months have without a doubt been more difficult however and my pain has become more difficult to manage! There is hope though because I can get back to where I was after I have the surgery. Yes! There is a long recovery but I’m refusing to believe that I’m going backwards rather than forwards. God is with me and encourages me every day when I need it the most. Over and over I’ve faced adversity through this illness and every time God helps me get through it. Like a boxer who gets knocked down but refuses to stay down, I bounce back up on my feet and get back to the task at hand.

None of this would be possible without God encouraging me and strengthening me as I go through all of this. The long nights like tonight where it’s 3:00am and I can’t sleep because of my pain are hard to deal with, knowing that I need to get up in the morning to be able to function with the rest of the family. Faithfully though He gives me the energy that I need to get through the long days and long nights like these. To be blunt nights like tonight suck! But I know that I’ll come out just fine on the other side because I’m not alone through this fight. On nights where things get like this the emotions of what I’ve had to walk through on this journey come right to the surface. As like so many other times though God always brings peace over me when I need it the most.

DSC_9253I guess the hardest thing about flare ups like tonight and several times in the last week, is being reminded of just how quickly things can change with CRPS. You don’t get to make a lot of choices when it comes to the illness itself but you can choose how your going to let it affect you. I’m not going to lie! Trying to put my thoughts together for this post has been brutal! I don’t know how many times I just wanted to give up, the fight inside me though said not to give up and to push through.

My intent tonight wasn’t to write something that was a real downer but to give you a snapshot of what I face daily while living with CRPS. Some days I feel fantastic for a person who’s living with chronic pain and others not so hot. I don’t think this blog would be real unless I gave you some of the bad with the good. Your emotions are constantly being played with, and there isn’t a day where I don’t have to ask God to bring things back under control. On the turn of a dime things can change with this illness and you have to be ready at all times to fight more than you’ve fought in your life. My fight right now is preparing myself for the surgery that I have to face once again. Knowing the increase in pain I’ll have to face and the healing time honestly makes me want to cry! I don’t want to go through that all again but know it’s necessary if I want to get the pain under control.

When your living with an illness like CRPS sometimes just finishing what you started is a big accomplishment! Tonight I did just that!

 

 

About Ross

My name is Ross and I want to welcome you to my site. I'm married to an amazing woman who is my best friend, and my soul mate all rolled up into one! I am the father of two very special girls who we adopted from China & Ethiopia. Together we make up one very multicultural family! In 2006 my life was turned upside down when I was diagnosed with CRPS/RSD. It was the start of a journey I never could have expected, and one that I couldn't fight without God. CRPS is a chronic pain disease and it started in my left hand. I lost mobility of my hand and started to experience pain unlike I ever could have imagined. Not to long after my left ankle became affected. I spent the better half of about a year not knowing what was going on in my body and traveling from doctor to doctor to find a diagnosis. As time went by I started learning more about CRPS and all its symptoms that it brings with it! As I started to learn more about CRPS I felt the growing need to share the information I was learning with others and to raise more awareness. As well I want this to be a place where we can connect and support one another. So I would encourage you to contact me if you want.
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7 Responses to Keeping It Real!!

  1. Chris H says:

    Ross you are an amazing man, all you go through on a daily basis is beyond my comprehension. I hope your next surgery does indeed help with your daily pain.
    I am happy you have a way of coping (God). I don’t have that at all… born and raised an Agnostic/Athiest!

    I don’t reveal that too often as it can make ‘Christian’ people turn against me!
    I believe that a true Christian should not do that, because I do live a good life, I try to do good every day, and not hurt anyone. What is wrong with that I wonder?

    Whoops, went off track there. Sorry *smiles*

  2. lisa says:

    Indeed you did finish, and I am so glad you did. You are a true inspiration, and not just for people living with CRPS. As I read this post, there were so many times when I said to myself, “I don’t know how he does it.” But you have for as long as I’ve “known” you, and you do it with such grace.

    I hope that your surgery will be real soon, so that you can get some relief, Ross.

    Please know that you are always in my prayers.

    Hang in there, my friend.

  3. Barb says:

    Ross, I’ve never experienced chronic pain like you do, and I have to say it sounds unbearable. I hurt my back just once and I was in pain for one night and oh, my… I can’t even imagine how you manage and yet you do so with such grace. I so hope that your surgery is successful in relieving your pain.

  4. Nicolle says:

    Your photos from Hawaii are so pretty, and they bring back so many fond memories for me. I can breathe easier when I think of Hawaii! I am so sorry about your increased pain lately. I can’t imagine how you deal with it all, and I will keep you in my prayers. You have a positive outlook still, throughout your trials, and you are so right that God has got this! Take care!

  5. Catherine says:

    Sending you good thoughts!
    xo Catherine

  6. Mickie Brown says:

    Ross, So sorry that you are in such pain–my thoughts and prayers are with you. Your photos are fabulous–I always love the ocean and a beautiful beach. Take care and keep your amazing attitude –it makes life go so much better if one can be positive. Mickie 🙂

  7. Laura says:

    I always see your smiling face over at Nicolle’s and so today I decided to spy on you…

    glad I did! I was diagnosed with pre lupus after over a year of unknown pain and being treated for lyme disease. My discomfort is totally manageable now, but I do recall the days unable to move and the fear involved.
    And like you, it was faith that got me through.
    It is always faith.

    Afternoon prayers today will have you included for sure!!!
    God Bless

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