How Does Temperature Affect Your CRPS?

DSC_9221-e1393642044450This weekend the temperature is suppose to fall to a balmy -59 C! Something is just so very wrong about that! There is cold and then there’s ……… ! Sorry no words can really describe weather like that. My plans are to stay inside and try and stay warm. My CRPS isn’t liking the extreme temps this winter and this weekend I’m sure will be no different. Not having my upper stimulator working properly isn’t helping matters. I’ve had more flare ups in the past few weeks and need the stimulator fixed asap! Any time spring wants to show up is fine with me. Apparently however the groundhog saw his shadow so six more weeks of winter it is! Yipeee!!!! Can you tell that it excites me. No wonder I found myself going through my pictures of Hawaii this week. So here’s a few more for any of you needing to think warm thoughts!

I know! I know! I’m from the prairies and I’m not suppose to complain about the weather because this is a part of life here but sometimes you reach a breaking point. I think I’ve reached it! This will be one of those winters where we set a lot of heating cost records. Not to mention how the weather can change the life of a person living with this illness. I’ve spent a lot of time indoors this winter. I usually try and get out to do some photography over the winter months but it’s just been to cold not to mention that the camera equipment doesn’t like to work.

So I think two paragraphs of ranting about our weather is good enough and that I need to move on to something else. I’m worn out this week and trying to find energy to do the things I need to do has been a real effort at the best of times. I had planned to give my website a bit of a facelift but I just haven’t felt up to doing it. So I apologize and hopefully in the next few days I’ll begin work on that. It’s been a while since I’ve done anything to my site and so I’m feeling the need to make a few changes. One of the changes I’ll be making will be to overhaul the links to other CRPS sites. So if you know of any good ones that you’d like to see me put up on my site then please email me the links.

DSC_92261The main focus of this blog has always been to tell my story while living with CRPS and to encourage others that we can get through this together and by supporting one another. That will always be the way I focus my content on this blog however I need to do a better job at mixing in more content that speaks to CRPS and the specifics about the illness itself. I’ve always felt however that it’s important to let the professionals do the speaking about CRPS itself, so that I don’t misinform people about our illness and chronic pain in general. So I’m still thinking about how to add that content into my posts. Lots of small tweaks are on the horizon so keep checking back. If you have any suggestions about things you’d like to see added to my site then please send me an email with your ideas. I’ve even thinking about adding a section to my site to sell my photographs where the proceeds would then go to CRPS research. I’m still very much in idea mode at the moment!

On the surgery front I’m still waiting to get a date that they will fix my upper implant. For the time being I’ll increase my meds to try and get me through. I’ve also increased the prayer asking God not only to give me strength to keep fighting but to heal my body. Well the kids are needing some daddy time along with my amazing wife so I’d better wrap things up for today. Stay positive and keep fighting!

 

 

 

About Ross

My name is Ross and I want to welcome you to my site. I'm married to an amazing woman who is my best friend, and my soul mate all rolled up into one! I am the father of two very special girls who we adopted from China & Ethiopia. Together we make up one very multicultural family! In 2006 my life was turned upside down when I was diagnosed with CRPS/RSD. It was the start of a journey I never could have expected, and one that I couldn't fight without God. CRPS is a chronic pain disease and it started in my left hand. I lost mobility of my hand and started to experience pain unlike I ever could have imagined. Not to long after my left ankle became affected. I spent the better half of about a year not knowing what was going on in my body and traveling from doctor to doctor to find a diagnosis. As time went by I started learning more about CRPS and all its symptoms that it brings with it! As I started to learn more about CRPS I felt the growing need to share the information I was learning with others and to raise more awareness. As well I want this to be a place where we can connect and support one another. So I would encourage you to contact me if you want.
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4 Responses to How Does Temperature Affect Your CRPS?

  1. Susanne says:

    -59 is just not for human beings. I find it hard to believe how anyone would survive that unless they were inside a warm house.
    I would be very interested in learning more about the illness and how it works. CRPS is one of those very “blurry” diseases to me, meaning one of those that I don’t know anything about.

  2. Catherine says:

    This weekend’s weather was unbearable wasn’t it? I did not stick my nose out into it at all. Stayed in the house and watched some Telemiricle. Yay Saskatchewan!! 🙂
    xo Catherine

  3. lisa says:

    It’s just been a brutal winter for so many, Ross.
    We were just getting some warmth here (single digits), and now we are back to subzero again. I guess it’s just time to sit tight and wait it out, since there are not many other choices. For now, I’ll just look at these beautiful images, and dream.

    Happy day to you, my friend!

  4. Liz says:

    Beautiful, beautiful images!!

    I’m praying the weather warms up for you soon. We talk in degrees Celcius here so I had to Google the conversions. We are also blessed to live in a sub tropical climate but perhaps that was in God’s plan too as I am originally from Melbourne which has much colder Winters. In saying that, the humidity here in Brisbane wreaks havoc with my Ankylosing Spondylitis in Summer, and even over the last few weeks when the weather has been supposed to cooling down (but hasn’t). I haven’t really noted what the weather does to my nerve pain… I must try to keep a check on that.

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