ABOUT

Welcome to my site! I am 47 yr old father of two amazing kids with an even more amazing wife. About 12 yrs ago I was diagnosed with a rare disease called CRPS/RSD (Complex Regional Pain Syndrome) and it changed my life. I created this website for others that suffer from the same condition, or who live with chronic pain. My goal is to raise awareness and the educate others so that we can not only find  treatments for this disease but hopefully a cure. As well I wanted to create a place where we can share what we go through on a daily basis. I want people to know that we don’t have to let the pain take over our lives, and that through a positive attitude that we can take on and accomplish anything we want to do.

It hasn’t always been the easiest of times as I’ve adjusted to what has happened, however it’s my faith in God that has carried me through. From the beginning things haven’t been easy as it took almost 2 yrs to find a diagnosis. I lost the use of my left hand and foot, and have to live with chronic pain 24/7. It was hard to come to terms with a world that was spinning out of control. I had to leave my job and rely on others to do things for me that I was used to doing myself. Here at my site you will read about different things I’ve had to walk through during my journey. I will also be posting about friends and family and how this disease has affected their lives.

This site originated as well as a way for me to express my emotions about how I was feeling as I tried to navigate through waters that I hadn’t been through before. Taking on a rare disease that so many others don’t understand including myself is a daunting task but I’ve discovered some things about myself in the process. I want people to know that it is possible to overcome, and that you don’t have to give up hope. If you want to receive regular updates please sign up for email updates or my RSS feed. Or if you want to connect with me then send me an e-mail through this site, or leave me a comment through one of my posts!

5 thoughts on “ABOUT”

  1. Thanks for the follow, Ross. I am not sure how you stumbled on my page, especially as I mainly post on photography (my “happy place”). I have shared a few posts about my life, my numerous illnesses/conditions and my daughters illness.
    I am glad you found me, though, as it’s always good to hear stories of courage & faith from others who are walking a similar road. It’s hard to talk to people about life with chronic pain when they don’t live with it or haven’t walked the road with someone who suffers with it.

  2. Hi Ross,

    I was just looking for some inspiration & I came across your site here. I’m a 32 yr old wife & mother of 2 young girls 5 & 2. I fell 6 yrs ago and waited months for a diagnosis then found out I was expecting my first daughter so treatment was very delayed! My crps is mainly in my right leg (toes to hip), left hip, back up to my neck. I’m unable to walk w/o the use of a crutch now my arms & face are falling victim to crps. I’ve been up & down emotionally. Today was a bad day!!! I’ve been working out alot it doesn’t help w/the pain but it makes me feel strong & having that edge is worth it. I was an EMT & 1st Lt. W/my volunteer agency I didn’t like to sit still. Today I lost use of my left arm which is also my walking arm. The pain is so bad right now all I keep thinking is “I can’t do this”. I’m physically & mentally shot & need sleep but the meds aren’t helping & the pain is starting to make my stomach turn! It’s sad to say but misery loves company & I just need to be reminded that there is life w/crps. I’m glad your here!

  3. Hey there Ross. I have been reading your posts for a little while, but, sadly never got a chance to write to you. I think about you quite a bit since reading what you have written. I have not seen any of your siblings (except for your oldest sister – and her son. I taught him to drive).
    I thank you for your last post. I can tell your journey has not been easy. Yet God is there – I know it. I was recently diagnosed with severe depression and anxieties. Something that, as it turns out, I had been living with my entire life, but I had no idea I was depressed. I thought everybody felt the same way. NOPE.
    To be honest, your strength – through your posts – has been a great help to me!
    Love ya Brother. I am glad and honoured to know you.

  4. Oh my gosh! Ross, thank you! I have had CRPS/RSD for a long time. I also have psoriatic spondylitis and that takes up most of my energy. I am a new member of the Breakthrough Crew and that led me to you- but actually, God led me to you! I call it a God-incidence. Thank you for sharing your story! I’m so grateful that I am not alone in this painful condition.

  5. I was diagnosed in 2014 following a vehicle roll over when I was hit by a truck running a red light. Rsd is in my left leg foot and part of my back. I’ve had numerous procedures ending with two spinal cord stimulator surgeries. I live in Tucson az and trying to connect with people here that have rsd/crps as well. The only group I know of is in phx that’s 2 hours away. Do you have any suggestions on how to go about being able to find others in my community?

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