As your reading this post I’m either busy trying to hunt down Mickey Mouse or I’m laying by the pool enjoying the California sun! That’s right I’m enjoying some much needed time away with the family and won’t be returning for a week. So if a few days go by and you don’t see a post please check back again. I’ll resume posting once I get back. With everything that I’ve been through in the last several months I just find that there’s a serious lack of energy to get through every day. I’ve been having a really hard time with this issue and not being able to sleep very well hasn’t been helping that issue.
I’ve mentioned before that with CRPS one of the things that comes along with is difficulty in sleep patterns. Now since my surgery I seem to get a little more broken sleep but it’s never very good. On an average night I maybe get 3 or 4 hours of broken sleep. What I mean by broken sleep is that I never get into REM sleep. When I am able to get any sleep I can usually count on walking up five or ten times. Usually what happens is that my body stays awake until it just gets to that point where it can’t take it anymore and it just has to shut down.
A lot of people don’t understand that this is all a part of CRPS and that most of us can’t remember the last time we had a great sleep with a solid eight hours of sleep. I could take sleeping pills but the effects that they have on my body just don’t make it worth taking them. Half the time they make me feel a whole lot worse so it’s not worth taking them. Not to mention that the pain usually ends up waking me up anyway, and it’s just adding to all the pills I’m already taking. It really ends up being a pros and cons decision and there end up being more cons than there are pros!
So as a result of the lack of sleep my body has had to adapt to living with less sleep than it should be getting. I wish it was different but this is the way it is at the moment. My daughter asked me yesterday if I’d had any dreams to which I answered “no” and that I couldn’t remember the last time I had a dream. Sleep to some people may be seen to some people as something that really isn’t all that important. To me it’s one of those small things that I’d love to have back. For now I continue to do relaxation therapy to get myself relaxed enough to sleep. Sleep is one of the things that hopefully over time the implants will help me with. Until then I try to do the best I can! See everyone soon!
Well the countdown is on! Only four more sleeps until we get to leave and begin our Disneyland adventure, for a week of magic with the kids. There have been a couple of close calls where the kids have almost found out, but so far they don’t know where they are going. It’s going to be a great holiday and our family needs this time on our own just relaxing and having some fun. It’s been a really hard year with the stress of my surgeries and just the adversity that the entire family has had to endure over the last year.
This trip is about the kids and they deserve to have some fun and get lost in the magic of Disney. I want this to be a time where they can’t stop laughing or having fun seeing as that is what visiting Disneyland is all about. I can hardly wait to see the look on my youngest daughters face when she sits down and has lunch with the princesses. I’m sure it will be the highlight of the trip for her. I’m going to do my best to put the pain and health issues behind me as best I can. The reality is that it will be next to impossible to do that, however I can do my best to minimize the amount it affects me.
My pain over the last couple of days hasn’t been all that great. My neck and where they went in between my shoulders has been bothering me to the point that I’m waiting to hear back from the implant clinic to see what they suggest I do. It’s hard to say why the pain has been worse over the last couple of days. I need some fast relief before we go. It’s so very frustrating because up until now things have been great and the pain has been under control. Oh well! I’m sure that spending some time in a nice pool and a hot tub along with the hot California sun will help bring me some relief!
This will be my first trip with all the new implant hardware in my body so I’m getting ready to set off all the alarms at the airport. I’ve been told that I need to prepare myself to be delayed a little longer than I’m used to. I’m hoping that things go smoothly and that I don’t run into to many obstacles at airport security. My understanding is that they are starting to get a lot better with people who have implants. I say load me into the full body scanner and get things over quickly from the start! Any way you look at it this should be an experience!
I’m really hoping that I come back refreshed and full of great ideas to blog about because I really feel like I’m needing a break at the moment. When I get back I’ll be sure to post the pictures of the girls and the looks on their faces when we tell them. We plan of video taping the moment we tell them. I hope that everyone has a Happy Easter and I’ll talk to you all very soon!
First of all I have to apologize to everyone for the length of time between post. I’ve been trying for a few days to put this together but it’s been busy and I haven’t been feeling my best as of late. It was a busy week and because of that I’m sure that’s why I’m not feeling as good. My pain as well as some of the other symptoms have been worse and so I’ve needed to slow things down a bit. The last few days the pain at the various surgery sites where the surgery had been done has been bothering me, so that has probably set things off as well.
I don’t know why but for one reason or another this post has been really difficult to put together. One of the reasons is that I’ve been very foggy in the head the last few days and it makes things a lot more difficult to put together. It’s the reality of this disease though and I’m not prepared to let it slow me down and stop me from overcoming CRPS. Without a doubt the implants have helped no question! However they aren’t a cure and I’m still going to have days where I find it hard, and today is one of those days.
I’m having a hard time with my concentration today and trying to put together a sentence. However I’m bound and determined not to let this disease defeat me. This is where I dig in my feet and fight even more so that I can win this battle. According to the word of God I have already won this battle and so I find strength in those words. I have come too far and taken back too much to be defeated now.
The message is pretty simple today, and so I’m telling you I’m having a tough day. We live with a disease that sees us up one day and down the next. I’ve made a choice in all of this not to stay down and defeated but to rise up against all of this and show you that it can be beat. You need to know that that none of this would be possible without having God do all the work that He’s done in my life. Tough days are going to happen along the way on your journey as well, and you have to soldier through them and then start moving forward again. I look forward to the day that I can write that one post that says I have no pain, and that I have full use of my limbs again!
Hi everyone! Well after many delays and numerous posts pushing off my official launch of my Etsy site that day has finally arrived! On Friday I got my red seal of approval and the final pieces came together and I am officially launching Ross McCreery Photography on Etsy. Yes! I won’t tell a lie! For me this has been a lot of work to put together but it’s all been worth it. Visit my store through the link that I’ve provided above or on the sidebar of my blog where I’ve added a button for you to link to my site. Over the next week I’ll be adding a lot more pictures to the store so if you don’t see something you like then come back when I’ve added more.
It was a crazy week last week with sick kids all week. Who are are still trying to get better by the way! Along with that there were doctors appointments, physiotherapy, errands to do, and all the usual things to do around the house. No wonder things have been a little bit off with my body. The funny thing though is that it really wasn’t a week that was all that far from the norm. This week we’ll start making preparations for our trip which is only two weeks away. It’s getting harder with each day not to blow it and tell the kids that we’re taking them to Disneyland!
I also plan to slow things down a bit this week because I’m pushing my body pretty hard, probably a little harder than I should at this stage of recovery. Although I’m feeling good and my pain is under control, other symptoms are starting to really effect me. Not to mention that the pain is starting to creep up. Honestly this has to be one of the hardest things when it comes to dealing with the after effects of the surgery. It’s easy to think that because some of your pain is reduced that you can do a whole lot more. Well I’m finding out quickly that there is a definite line, and you have to be careful about just how far you cross it.
For today I’m keeping things short and sweet. I know this isn’t much of a post, just a quick update! It’s gearing up to be another busy week, and I want to pace myself through all of it. I hope the start to your week is great and I’ll see everyone soon!
Well it’s been an interesting week so far and it all started on the weekend. Over the last two weeks both of my daughters have been fighting illnesses. My youngest daughter was fighting a cold last week that just didn’t want to clear up and go away. As the week went on things just kept getting worse until we ended up in Emerg on Saturday. I pretty much spent the entire day trying to get the poor little bug some help to make her feel better! So she ended up being put on antibiotics to try and make things better, however three days later and things still weren’t changing.
So on Monday in we went again to her pediatrician to see what other things we could do in helping her to get better. Now she is on a nebulizer to try and open up her lungs and stop her coughing. It seems like over the last couple of weeks all we’ve been dealing with in our house is sickness, and it’s time to see the household get healthy again. Over the last 24hrs though she seems to be improving. In dealing with my girls though my body is being pushed to the limit at the moment, and I need to slow things down a bit before things get out of control.
With all of the focus at the moment going my kids and them getting better its been hard to find the time and energy to blog, and at the same time trying to put the last few finishing touches on my Etsy shop to get it open. So needless to say I never got out to take any pictures last weekend!! I am hopeful however that this weekend coming up will provide me with a chance to get out there and get a few pictures. Yet trying to find the time to break away isn’t easy because so many other things are taking priority at this time.
The one thing that I know is that there is never a dull moment in our family! My two girls mean the world to me. They are the most precious gift God has ever given me along with my wife. Even though it may not be a whole lot of fun to deal with the illness and all that comes with it, they need that comforting and caring that only their parent can provide. There is something so special about being able to curl up with your child and watch a movie or read a book with them when they’re sick. The other night my youngest daughter Katelyn ask me to be her stuffy to hold onto while we watched a movie before bedtime. I wrapped my arms around her and just like when she was six months old she fell asleep during the movie. These are my priorities! So when things get back to normal I’ll be able to get back to routine. I’ll talk to everyone soon.