Promoting Awarness Of CRPS

Hi once again! It’s only Wednesday and I feel like we’re at the end of the week. These first couple of days have been really busy but things are only going to get busier as the week goes on. I only hope that my pain stays at a reasonable level and doesn’t spike up like it can sometimes do. As of late I’ve been putting a lot of time and what energy into trying to get ready for the Arts Festival that I will be trying to sell my photographs at. I’m hoping for amazing things to happen and that it will be a really big success. So here are a few photos I’ll have at the sale. So sorry if I’ve been a little more distracted than usual.

I want to take a second to thank my friend Lydia over at Sea Beautiful. She runs a fantastic site which I really recommend that you check out. The site never fails to inspire and they are always looking for opportunities to pay it forward. They were kind enough this month to write a post about me and my site and so I just wanted to say a big thanks! I really appreciate sites like theirs that help me in trying to get my message out. If I didn’t have that help from others then I’m not half as effective as I’d like.

With that being said I wanted to tell everyone about a fantastic new site on CRPS/RSD that I have been told about. The site is called PARC for short or Promotional Awareness of RSD and CRPS in Canada. It’s a site designed to support, educate, and inform about the illness. What’s nice is that it’s a website that not only educates those in the CRPS community but it also targets medical professionals about the early diagnosis and treatment of CRPS/RSD. There are a whole bunch of things that the site offers, to many to really get into so I would urge you to use the link I’ve provided to check out the site. I will also be putting the link on my sidebar if you want to access it.

After six years I have a pretty good idea of what CRPS is all about but after looking at this website I realized that there were still a lot of things that I didn’t know about it. As well I was able to link certain things together that I didn’t realize may be related. So from an educational side it’s a great site and if your looking for more information this is where you will find it. I find that a lot of sites have medical terms that make things really hard to understand. This site lays it out in terms that are easy to understand. In Canada slowly the education is starting to come but we need more than just websites and places to find materials. We need more programs put in place to educate. Public awareness needs to be better. If we can do a better job of educating in all the right areas then it’s going to lead to a better chance of early detection. If that happens then there is a better chance of reducing some of the symptoms that we deal with.


Visiting Day!

Well another week has come and gone and I can hardly believe how quickly time has been going as of late. I think I had mentioned in my last post that I would be visiting the implant clinic again this week to see why my pain level is going up at the moment. Ever since I got back from Disneyland things just haven’t felt quite right and the pain has been bothering me more. So it was off to the clinic this week to do some brain storming as to why things are bothering me so much right now.

When we got to talking about all the different reasons that my pain could be up we weren’t really able to draw one conclusion as to why I’m flaring up the way that I am. It isn’t stopping me though I keep pushing and moving forward believing that it’s going to be an amazing day when I’m pain free! With the pain being worse my sleep has been affected as well and I’m lucky if I get a good solid sleep. So the last couple of days have been a little rough when it comes to functioning the way I’d like to.

We aren’t sure but there is the possibility that coming down off the medication might be causing some of the extra pain as well. It’s a fine line to find the right balance of medication to combine with the implant. It’s possible that I might be too low and as a result we’ve bumped my meds up to see if it makes a difference. When we first started talking about reducing the meds I knew that it wasn’t going to be easy on my body and that we’d have to do lots of adjusting! It is nice though that I’m able to come down a bit off some of the meds. Although like they said it isn’t easy to do because your body has to do a lot of adjusting that it has to go through.

Overall what was encouraging was that they said I’m doing well post implants. Even though I’m having a few problems with elevated pain you need to look at the big picture. A few months ago we were hoping to reach a target with my pain medication. I’ve now reached that target and all I need to do is some fine tuning. If you look at my overall quality of life there is no question that it has improved. So even though here and there I’m having to deal with a few flareups I’m happy with where I’m at at this stage in the game.

I’m going to keep today’s post short because well really if I’m being honest my brain needs a rest. I just need some me time! So I’ll see you all in a few days.



My Frustrating Phone Call

Hi again everybody! First off here are a few more pictures! Today’s original post will have to be put on the back burner because a certain phone call has me taking this post in a totally different direction. Yesterday I got a call from the security company that is handling my claim, in regards to my medical equipment that was passed through the scanners at the airport in Vancouver. I wanted to give you an update of what has happened as a result of all of this and where things are going from here. If you are having implants put in then this is information that I think you need to know. If you missed my last post about what happened then I suggest you read it before carrying on with this post to get caught up.

After getting off the phone with the agent that dealt with my complaint, I felt as though she understood my concerns. I really did think that my side of the story had been heard and that some of the issues that I had would be addressed. Well when the phone rang the other day I really wasn’t prepared for what was going to come jumping through the phone. When I spoke with the agent her whole demeanor had changed, and it was pretty clear that there was no use in pursuing things any further.

She started out by explaining that they had watched the video of my family and I going through security. To make a long story short she said that my wife and I watched the equipment go through the screening device and that we had every chance to stop the bag with the equipment from going through. Funny thing is my wife was already on the other side of the scanners. Apparently I’m suppose to stop the officer from putting the bag through. Didn’t I tell him not to put it through when I handed it to him??? Aren’t they the ones with all the authority??? I’m sorry but I was probably upset by what was being done and was frozen in shock!

So based on the fact that I apparently watched it go through my claim is denied! The way they treated me was never brought up and once again it was pretty clear that she didn’t want to listen to what I had to say. It was apparently ALL up to me to stop that bag from going through the scanner and because I made no effort they take no responsibility!! I think they handled things very poorly and the least they could do is admit that. So now I’m left with nobody to take ownership. Wouldn’t audio have been great to have in this case.

At this point in time all I can really do is try to forget about the way we were treated and move on. Would it have been nice to get a sorry we made a mistake? Of course it would but I’m not willing to lose any sleep over the issue. At the end of the day they are the ones who have to live with how they conduct business not me. I just have to hope that my medical devices keep working fine. Thanks for listening to me rant today! Talk to you all soon.

My Implants And The Airport!!

This has been a really busy week and so trying to find time to put up a post has been a bit of a challenge. Not to mention that I’ve been dealing with a bit of a flare-up since getting back from vacation. As well I’ve also been spending a lot of time trying to put things together for the arts festival that I will be showing my pictures at in a couple of weeks. In today’s post I’m giving you an inside glimpse at some of the pictures that will be a part of the show. These are also pictures that I have up in my Etsy shop for sale. So feel free to visit my shop sometime at and take a look at some of my work.

Like I’ve said it’s been a hectic week and it hasn’t helped that my pain level has been up. Why my pain level is up is I really don’t know. It could be several reasons the reduction in pain medication, increased stress, or even trying to get over the exhaustion of the vacation. All I know is that up until now I’ve been feeling good and the implants have been doing their job in helping to control the pain. Speaking of vacation I wanted to tell you a bit about something that happened on my way home.

When I received my implants I knew that I was going to have to go through a bit more when it came to going through the security in airports, and I have no problem with having to be checked out a little more carefully. I give myself lots of time to get through and I’m ready to be subjected to anything and everything. When we went to Disneyland I didn’t have one problem on the way there, it was on the way home that I encountered a problem.

At each and every airport I ask the security agent who’s taking your things and putting them through the scanner to NOT pass my medical devices through the machines. I can’t take the chance that the scanners will mess up my devices seeing as their combined value is $5000. So I hand everything to him and ask him if he could walk them around and swab them and check them like all the other airports have done and had no problem with. What does he do HE PUTS THEM THROUGH THE MACHINE! To make a long story short one thing led to another and we wanted someones name to make a complaint. However they refused to give us anyone’s names. Even the supervisor refused to give us his.

We tried to explain why we were upset but ended up being met with arrogance and it was clear that what we had to say was not of importance. Not to mention that my kids were getting upset by what was going on! The funny thing is that right on the form that we were given to file our complaint it wanted names and badge numbers of the employees. It was very clear however that we weren’t going to get very far with the people in that airport so I was resolved to walking away upset by what had happened.

When I got home I called the company and to my surprise got someone great who apologized for the way we were treated and promised me that they would investigate the matter. She told me what I needed to do on my end and what would be done on her end and then assured me that if there were any problems with my equipment in the future that they would take responsibility. She took the time to listen which went a long way. Admitting that he made a mistake by putting my things through the machine would have gone a long way! Anyway it’s still all being worked out but that’s my rant for today!  I hope you enjoyed the pictures and I’ll talk to you soon.

Pride In The Face Of Adversity

Hi again! As I was reading through the comments that were let on my last post one in particular really struck a cord with me. So I’ve been thinking about it and the more I thought about it, the more I knew I had to post about it. Before I go on though I have a few more pictures from the trip, that will be placed throughout the post. The comment that was left was having to do with pride and not allowing it to stand in your way. When I was in Disneyland we had a lot of walking to do, something that isn’t easy for me. So I could have let my pride stand in the way and just toughed it out all week. However I had to set that pride aside and allow myself the option to get some extra help if I needed it.

Now as it turned out because of how crowded it was I found it easier to walk for short distances and then sit and take breaks. I feel I did a good job of letting my wife know when I couldn’t keep going and when I could. This is something that isn’t always easy to do as others of you may know who struggle with disabilities. Our pride often stands in our way and becomes a wall that proves to be hard to get around. Its been an area that I’ve had to pray about and ask God to help me in getting past. At the start of all of this it wasn’t easy to admit that I needed help in various ways. My pride was one of the things that often stood in the way.

Slowly I started to break down that wall and get myself to a point where my pride wasn’t as big an issue. There will always be times where you will want to do things on your own or push yourself too hard just to do things without help. However you need to be able to give yourself a break and admit that sometimes you might need a little extra help and that you can’t do it alone.

I’m not at all saying that this is easy to do at all because it really isn’t. However if you humble yourself and give yourself permission to receive help then it’s going to be a lot easier to get through each day. It’s all part of accepting things for the way that they are. So I have a challenge for some of you out there who struggle in this area. Allow yourself to set aside your pride and see what happens. I promise you that you’ll start to knock down that wall that that may be standing between you and moving forward!