Where’s Your Frame of Mind?

Things have been a blur the past few weeks because its been so busy! The month of June is one of those months where you both love it and hate it! With the school year coming to an end we have all the usual year end things happening and at the same time we can’t wait for summer holidays to start. Just get me through the month and all will be good. Throw in the tail end of our cottage build and finding time to practice self care has been really hard. I just have to keep telling myself I’m almost there!

I’m going to be honest with you and tell you that today I’m not doing so hot, and doing everything I can to fight off pain and keep myself functioning. Sometimes I think that this is when I do my best writing however because it helps me tap into the reality of what I deal with every day! I have always tried to live life with a chronic illness with a positive attitude, to be an example to those around me that life is still great in so many ways!  That will never change! I promised myself one thing when all of this started and that was to make a difference in other peoples lives! To learn as much as I can about CRPS and take that information to as many people as possible, being a voice in the process to those affected by this illness!

Sometimes this disease gets the best of you and it takes nothing to get mad at it! Why? Quite simply because every single day it reminds you that its there and that its trying to steal from you. The key however is that I won’t let it. Even on days like today where I’m having a bad day with pain, I focus on being positive and not letting it steal from me. That’s where surrounding myself with people who are positive and help me to focus on the good things is so important. I can’t stress that enough because it can be so much easier to pick out all the bad stuff that’s going on. I try and look at all the good things I have in my life like my faith, family, or circle of amazing advocates that I have around me. They’re always there to pick me up when things get really frustrating and when I want to naturally go to that negative place!

I’ve also said it a million times and I’ll say it again and again God is the single most positive influence through all of this. When nobody else can be there in those really hard times for me He can be! I’ve said a lot of prayers through this journey and will continue because I know He hears them all. When things seem impossible at various times He makes them all very possible. Too many times I didn’t have the answers or the obstacles that were in front of me seemed just too difficult to get passed! However every time I ask God for help a path or a door opens for me to get through or that answer becomes quite clear. That isn’t chance or something random that happens. That’s God answering prayer!

Some of my fellow advocates have gone through journey’s that seem just too unbelievable to be true! I don’t see them that way at all. Often some of those stories have brought people really close to death. I look at them and see a testimony that a person has and the power to speak into someone else’s life. This again is God working through a person and using that person in a certain way. I know talking about faith isn’t very easy for some people but for me it is because I believe in the things that He has done and is doing in my life. I have experienced first hand the way that He works in my life and through others. So when people tell me that they are all alone I tell them that your never alone because the truth is that you aren’t!

I always tell people that even though I’m going through all of this every second of every day I couldn’t feel stronger on the inside. Again I believe that this is something that God has placed within me in that He has enabled me to face or handle anything! There are days like today where its a struggle and that the pain is intense, but God never said that there weren’t going to be hard days or ones in which we don’t have to face adversity!

You Hold The Power To Create Change

Happy New Year everyone! The very fact that your reading this means that not only “you” but “I” managed to get through the holidays! Yes its a little past New Years but everything in my world goes at a slower pace! It’s a new year and I’m looking forward to renewed health and wellness for all of us that are suffering from chronic pain. For me personally it’s been a challenging few months battling a few symptoms, that lately seem to be in a constant state of flare. However it doesn’t change how I approach this illness, and I continue to remain optimistic and hopeful. At the same time I’m feeling the need to take a time out and rest my weary body.

In starting out the year I need to refocus and get back to basics which is looking at myself, and to know that the single most effective way to beat this illness is held within me. I’ve been digging deep within myself lately asking myself how I’ve been able to get as far as I have in this battle against CRPS. When things have seemed impossible they’ve been made possible and to that I need to give credit to God for being there through it all. My brain starts to hurt when I think of the number of times when things were too tough to handle, or when the roadblocks I faced seemed next to impossible to get past. Every time though with strength, determination, and a positive attitude I manage to get through whatever situation I’ve faced. Once again I have to give credit to God for giving me all of those things.

Attitude and how we approach our illness is huge, and often I think we can find opportunity to do a much better job at this. I want to be really careful in how I word things because my intention is to make us think about how we approach our illness. Some things are not in our control and I realize that! So there are variables that of course are going to affect how we think, approach, or even act on our diagnosis. That being said I always think there’s room for improving. So what I’m saying is look within your own situation and really ask yourself is there anything you can do differently, or change about your attitude or how you handle your illness. Its a really tough question because this is where some of those variables come into play. You may have had bad experiences with physicians or family members that just don’t understand what your going through. So my question to you would be this. Is there an opportunity to have grace or forgiveness in that situation? Or are you holding on to anger and resentment towards them? I use these two examples because these would be the two that most of us can most easily relate to.

Both these areas do hold opportunity for use to change our attitude, and although it might not be very easy it might just make walking through your journey a little easier! We get so caught up in some of the things that are out of our control that it stops us from seeing that some of the answers are right there within us. Not to mention that it can cause a huge shift in our attitude! That doctor who’s working really hard to help us in a really crappy situation isn’t responsible for us being sick. Yet often anger and frustration often gets directed towards them just because they can’t provide us every answer “you” or “I” want. Even when we come up against that physician or specialist that doesn’t know about our illness or doesn’t treat us the way we deserve to be treated. There’s an opportunity right there in how we deal with the situation that may arise as a result! Try to look at things from a different perspective because maybe just maybe some of the answers aren’t as cut and dry for them as they may seem for us. We get so desperate for answers however that we lose perspective of that because we start letting our emotions take over.

Believe me I get it! All I’m really trying to say is that sometimes we miss what’s right there inside of us. We hold this incredible amount of power within ourselves to change the entire outlook of our diagnosis. Along with changing how we manage every day life within our illness. Do you get what I’m trying to say? The question is this! Are you willing look within yourself to find it?