I’m back! Did you think I was never going to write another post? I needed to take a bit of a break from all the writing to take care of me! I’ve been trying to focus on getting better, and so I just needed to take a bit of the extra stress off my plate. Slowly I continue to get over my surgery. When I was at the neurosurgeons office a few weeks ago, he told me that I can expect it to take until Dec or Jan to recover. Good days are mixed with bad but when your fighting chronic illness and CRPS in particular that’s to be expected. I’m taking it one day at a time and doing only what my body wants me to do!
Its been a long road to this point and I’ve been doing a lot of thinking about the direction I’m headed and where I’m at in this very long journey. Recently I was asked to write my story by a friend Victoria in the UK at “Burning Nights” and all that I’ve had to go through in living a chronic life. If you get the chance go over and visit her blog at http://chronicpaincrps.com. As I wrote my story though I began to think of where this road is taking me and how I’m feeling at this very moment. Without a doubt I’ve been through some pretty tough times and gone down a few dark roads. Gods been there however to put me back on the track and keep steering this ship in right direction.
I know I’ve mentioned how I was feeling at the start of my diagnosis so I won’t get into that story. All I’m going to say is that I’m in a different place with my CRPS right now than I was back then. Even trying to push through this healing of my most recent surgery is different because I’m not letting the mental side of things distract me. I push forward and try to make the most out of what I can at this point in time. Something has shifted inside however and I really can’t put a thumb on it. I feel different filled with more fight and passion than I’ve ever had. Passion for what? Passion to bring about change! From the basics of how we live with chronic illness, to the perception of those of us living with it. I’d also like to see government make changes in how they support and care for those living a chronic life. The only way to do that is to be a part of that change! Fighting through advocacy for my illness and other chronic illnesses.
It isn’t that I’m not still dealing with a full plate battling CRPS because believe me I am. Something however won’t stop tugging at my insides, telling me I need to do more and try and make more of a difference in fighting for CRPS and Chronic Pain. I wake up in the morning and go to bed at night thinking of ways in which I can help to make a difference. I am now involved with a Spoonie Comunity that not only supports each other but advocates to raise awareness and drive change! I have now made friends with people living with chronic illness from the all over the world who are fighting for the same cause. If you don’t know what the term Spoonie stands for its a group of people that live with chronic illness. Like I said at the beginning of this post something is shifting and I believe its only for the better. I also believe Gods hands are all over it!